Gov. Snyder accepts GV graduate’s proposal to make May the National Ehlers-Danlos Syndrome Awareness Month| 5/3/14 3:27pm
Michigan Gov. Rick Snyder has proclaimed that May is National Ehlers-Danlos Syndrome Awareness month. The idea for the month originated with Jennifer Filber, a 1997 graduate of Grand Valley State University. Filber was born with EDS, a group of genetic disorders that is characterized by mutations in connective tissues. The mutations cause dislocations of joints, fragile skin that is easily bruised and scarred and unpredictable organ rupture that can cause acute pain, internal bleeding, stroke and premature death. Currently, there is no routine screening being done for EDS and there is no cure. However, an early diagnosis can give patients a chance to create medical plans and ensure proper monitoring.